Patient Advocacy Day on Capitol Hill

Hosts Terry and Dr. Bob catch up with patient advocates following their virtual meetings on Capitol Hill. Patients Rising Now Patient Advocacy Day, held at the end of October, had patients and caregivers sharing their healthcare stories and asking for support on important bills to improve access and affordability to care, like the Safe Step Act and more. 

Plus, a new report on myasthenia gravis therapies raises red flags. Health economist Dr. Paul Langley examines the latest report from the Institute for Clinical and Economic Review (ICER), and explains why it could hinder patient access to important myasthenia gravis therapies. 

And if you’re confused by Medicare, don’t worry! Legal expert Monica Bryant of Triage Cancer breaks down all the different kinds of Medicare, and what patients should know when choosing a plan. 

Hosts: 

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent, Patients Rising

Guests:

Maria Gmitro, President, Community Outreach and Patient Advocacy Director,  TrackMy Solutions

Christine Von Raesfeld, Founder/CEO, People with Empathy

John Linnel, State Captain, COPD Foundation

Nisha Trivedi, Rare Disease Advocate

Paul Langley, Ph.D., Lead Researcher, Patient Access and Affordability Project

Monica Bryant, COO, Triage Cancer

Links:

Safe Step Act

Improving Seniors’ Timely Access to Care Act 

BENEFIT Act 

Worksheet: Medicare Plan Options Comparison 

Health Insurance Laws by State

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: podcast@patientsrising.org

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.