Episodes

At-home genetic testing allows expecting parents to see if they might be carriers for genetic conditions, like cystic fibrosis or sickle cell. But the data from these tests are only one part of the equation. Patients need access to experts …

Hospitals and insurers are now required to share their prices and negotiated rates with the public. The problem? Most of the data is inaccessible to patients. Marcus Dorstel, Vice President of Operations at Turquoise Health, shares how his team...

Congress inches closer to a massive, 725-page spending bill referred to as “Reconciliation.” It includes several drug pricing provisions that claim to lower Rx costs for seniors. But a closer look reveals that those savings aren’t as widespread...

New procedures and nonopioid pain management give patients cutting-edge treatment options. But they’re frequently out of reach due to a lack of insurance coverage. Hosts Terry and Bob discuss how the bipartisan seeks to change that. Plus, Dr....

In this special bonus episode, Patients Rising Now Executive Director Terry Wilcox provides her perspective as a caregiver to seniors amidst ongoing debates in Congress over how to lower drug costs. She shares why Medicare price negotiation, a...

For 17 years, the gastroparesis community has fought for the FDA to allow it access to a treatment they say is necessary to improve quality of life. Gastroparesis advocate Michael Smith details the efforts to make sure that patient voices …

Biosimilars have the potential to lower costs. But due to middlemen like pharmacy benefit managers (PBMs), those savings don’t always trickle down to patients at the pharmacy counter. How can we fix this system? Julie Reed, executive director of the...

Tired of telling your health care history over and over again to providers? Jessica Lunshof, a former nurse and caregiver found herself in this cycle that wasted time and placed an emotional burden on her and her family. She joins …

Accelerated approval drugs have given patients access to care they otherwise would have waited years for. A new study shows that these drugs account for less than 1% of Medicaid spending - yet programs have placed restrictions on these medicines …

Keyla Caba is a patient advocate who lives with Crohn’s disease and ulcerative colitis. Her son was also recently diagnosed with a chronic disease, and she shares the challenges of being both a patient and a caregiver, mental health, and …

This week, patients with chronic disease from across the country convened in Washington D.C. for the We the Patients Fly-In. They met with members of Congress and their staff to advocate for several pro-patient health care bills that would improve...

No insurance? No problem. Blueberry Pharmacy in Pittsburgh is forging the path for a new kind of pharmacy. By cutting out the middlemen in the supply chain, Blueberry Pharmacy is able to provide its customers with inexpensive medications. It’s more...

Precision medicine harnesses the power of genetic data, which can improve treatment regimens and overall outcomes for patients. But accessing that data remains another challenge. Field correspondent Kate Pecora speaks with advocate Christine Von...

The formula shortage crisis has been devastating for patients with rare metabolic conditions, like PKU, who depend on specialty formulas daily. We hear from patients and families impacted by the shortage, including Lillian Isabella and Sarah...

A shark has entered the prescription drug waters. Entrepreneur and ABC Shark Tank investor Mark Cuban founded the ‘Mark Cuban Cost Plus Drug Company’ which aims to slash prices, improve transparency, and provide greater convenience to patients....

“Your medication is no longer covered” are the words no patient wants to hear. Yet this is a common occurrence for patients with rare diseases who are on private health insurance plans. In an effort for plans to save money, …

In recognition of ALS Awareness Month, we get a report from the frontlines of ALS research, including new breakthroughs that impact patients. Dr. Sharon Hesterlee, the Chief Research Officer at the Muscular Dystrophy Association, gives us the big...

Have you ever felt overwhelmed or confused in your health care journey? Many patients juggle numerous phone calls and appointments with labs, pharmacists, and specialists, while also trying to understand what is and isn’t covered. To help, some...

Frustrated with the health care system? Want to improve health care access, affordability, and transparency for you or a loved one? Learn how to make your voice heard by decision-makers on Capitol Hill by joining us for our 2022 #WeThePatients …

Transportation to and from appointments, or lack thereof, is a major hurdle facing patients who contact our Patients Rising Concierge team. Any delays caused by transportation have a domino effect on a patient’s healthcare journey and can lead to...

The access and affordability challenges that face patients with Alzheimer’s and diabetes are not uncommon. In fact, they impact all patients within the chronic disease community. Hosts Terry and Dr. Bob explore underlying issues throughout the...

$0 deductibles and $1 prescriptions. It sounds almost too good to be true, but companies across the country have made these health plans a reality for their employees. For the past two decades, the cost of insurance premiums and deductibles …

Healthcare discussions in Washington are in full swing this week. Both the House and Senate meet to discuss a multitude of bills affecting everyday Americans, specifically those with rare and chronic diseases. Hosts Terry Wilcox and Dr. Bob break down...

Will free vaccines for Medicare patients improve health and lower overall costs? The quick answer, maybe. Doug Badger, former policy advisor to the White House, explains the pros and cons of eliminating cost-sharing for preventative vaccines under...